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MINUTES OF UTAH INTERAGENCY COORDINATING
COUNCIL (ICC)
FOR INFANTS AND TODDLERS WITH SPECIAL NEEDS AND THEIR FAMILIES
Utah Department of Health, Division of Community and Family Health Services
44 North Medical Drive, Salt Lake City, Utah
March 15, 2002
Attendance (alphabetical): Jill Adams, Caroline Bass (via
Telehealth), Trisha Beck, Brenda Broadbent, GleeAnn Clayton, Pamela Colson,
Kris Fawson, Colleen Fitzgerald, Timothy Floyd (via Telehealth), Kristina
Hindert, M.D., Meredith Mannebach, Catherine Nelson, Judi Nielsen, Jill
Oberndorfer, Susan Ord, Gina Pola-Money, Diana Sagers, and Shelley Wiseman.
Excused Absences: Chris Giacovelli, and Sherry Hancock. Absentees: Paul
Ebbert, M.D., Barbara Johnson, and Maree Webb. Visitors Present: Victoria
Bushong, U of U grad student; Kay Meacham, U of U grad student; and others.
Baby Watch Staff: Lori Brady, Vanya Mabey, Kimberly Morris, Jennifer Saunders,
Janet Wade and Mary Potter.
I. WELCOME/INTRODUCTIONS. The meeting commenced at 9:40 AM, conducted
by Chris Giacovelli. Introductions were made. Telehealth site: St. George.
II. APPROVAL OF MINUTES. With no suggested changes,
A MOTION was made by GleeAnn Clayton and seconded by Colleen Fitzgerald
to accept the Minutes of January 18, 2002 as written. Motion carried unanimously.
III. LEADERSHIP TEAM REPORT.
A. Nominations for Leadership. Judi Nielsen will rotate off the tri-chair
Leadership Team in June 2002. Nominations are requested for new leadership
to serve with Sherry Hancock and Chris Giacovelli. Submit prior to May.
B. Nomination for Parent Representative. Marcella Jaramillo was nominated
by the Summit County E.I. Program to become a Parent Representative for
ICC. She is trilingual and could also represent the Hispanic community.
A MOTION was made by Dr. Fan Tait and seconded by Jill Adams to accept
the nomination for Marcella Jaramillo. Motion carried unanimously.
C. Upcoming Meetings. The Executive Committee will meet on March 21, 2002.
Submit suggested agenda items for this meeting and for the ICC meeting
scheduled for May to the secretary or chair.
IV. BABY WATCH REPORT.
A. Building Block. Susan Ord announced that the early intervention budget
increase request to the legislature was not received. Early Intervention
did receive a small grant increase from the federal allocation - which
will help in the completion of next year's contracts. The e.i. program
will begin spending the federal grant earlier (July 1, 2002 rather than
in October). This will leave no carryover money for next year's contracts,
as there has been in previous years. There will be at least $1 million
less for next year's contracts (2003), not even accounting for a probable
increase in numbers of children qualifying for services. Susan met with
Dr. Fan Tait, Bureau Director, and Dr. George Delavan, the Division Director
to make the decision in spending.
The Finance Committee also continues to meet to discuss long-term planning.
Some of the ideas will have to be put into place this year.
Four areas are under discussion: (1) Request a sizable new Building Block.
To be prepared before the end of summer with internal hearings within
the Department of Health (DOH). (2) Investigate billing insurance companies.
This will likely involve initiating parent fees. Shelley Wiseman and her
supervisor, Suzette Green-Wight, will assist the Finance Committee to
meet with Altius Insurance Company. This will give the BWEIP office an
opportunity to explore the issue and ask questions. (3) Increase Medicaid
collections by establishing a new Medicaid waiver. The type of waiver
and feasibility will be explored. (4) Change eligibility criteria for
services. This will involve approval from the federal government with
amendment of the state plan, and statewide public hearings. Brenda Broadbent
will assist, as Part B preschool services are impacted by e.i. Part C
services.
Other resources include the ICC, NEC-TAS for technical assistance, and
the e.i. Providers. Susan will attend the Providers' meeting on Monday
for further discussion and input.
A special thank-you was extended to the families and Coalition for People
With Disabilities for their letters and testimonies to their legislators
for this year. Their work is not unnoticed, even though the funding goal
was not achieved.
V. BUREAU HEALTH DEPARTMENT REPORT.
A. Building Block. Fan Tait reiterated Susan Ord's report. Running a state
program to zero has never been done before. Fan expressed gratitude to
those who gave their support during the legislative session. She reminded
the group that if new funds were requested, a successful effort would
require every parent to contact their legislators in August and September.
Work begun now will be implemented in several months. She added that CHIP
would not receive additional funds.
B. Medical Home Grant for CSHCN (Children with Special Health Care Needs).
The web site with five best practice guidelines has received great interest.
Several demonstrations were given, including to the federal government.
Fan offered to show the ICC at its next meeting. With a National Library
of Medicine grant, more guidelines will be added for downloading. CSHCN
applied for a Genetics Grant as well.
VI. SUBCOMMITTEE REPORTS.
A. Finance Committee. Janet Wade highlighted the meeting and its four
activity group assignments. (See Minutes of March 8, 2002).
B. Parent. Jill Adams talked about increased legislative support and building
a phone tree. More families are needed to join. The ListServe is well
used that sends one message to all parents. An agenda item for the upcoming
meeting of March 20, 2002 concerns the referral process, which is similar
to child find. Input will be given to the DOH. Diana Sagers can obtain
business cards for distribution (the first 250 are printed free).
Jill Adams invited Trisha Beck to the next Parent meeting scheduled for
March 20.
Meredith Mannebach suggested talking to other agencies that have successful
family groups. Meredith will be invited to the parent meeting. She will
share the name of a parent network for DSPD (Division of Services for
People with Disabilities). This group experienced tremendous growth.
A parent team, along with Barbara Fiechtl, will attend an ICC Parent Leadership
Institute in Park City, Utah, in May. They will report at the September
meeting.
C. Expanding Options for Infant-Toddler Mental Health. Refer to www.utahbabywatch.org
for collaborative work done. Janet Wade met with community mental health
coordinators. She encouraged them to send therapists to the Infant-Toddler
mental health course to be held July 8-10 at the Graduate School of Social
Work's Summer Institute at the University of Utah. Janet also presented
the model of collaboration between the Southwest Community Mental Health
Center and the St. George E.I. Program. A memorandum of understanding
is being developed between them. Janet also gave information on a SAMHSA
grant to develop community systems for infants and toddlers.
TLC is conducting a two-day workshop with grant monies they received from
IOTI.
Dr. Kristina Hindert, Division of Mental Health, will sponsor 12 openings
at the Children's Center for community mental health providers on infant-toddler
mental health issues April 11-12, 2002.
VII. POLITICAL ISSUES. Trisha Beck spoke about
upcoming caucus meetings on March 25. Fan Tait encouraged families to
attend. It is important to visit both parties. By new law, Republicans
require attendees to be registered; the Independent and Democrat parties
don't. Kris Fawson will train parents on how to become better advocates.
Kris will be available throughout the summer.
VIII. ROUNDTABLE DISCUSSION.
Child Find. Brenda Broadbent requested discussion through the ICC and
DOH on child find procedures that bring preschool and e.i. together. Federal
requirements are difficult to adhere to because of confidentiality and
other issues.
A child find community activity will be held at St. George on April 5.
This Health Fair is coordinated between the school district, DOH and E.I.,
partnering with dentists, pediatricians and the Dixie College of Nursing
who all donate their time to do developmental screening. Over 800 people
are registered. Also participating are DSPD and mental health. Advertised
by radio and newspaper.
Family Links Conference. A conference for families of children and adults
with disabilities, April 12-13, 2002. (See handout).
Meredith Mannebach teamed with Baby Watch to bring a grant from Maryland
to train families and caregivers on respite care.
Legislative Update. Trisha Beck and Kris Fawson discussed the shortfall
in budget and cuts in programs during the split sessions. The Ways and
Means and Appropriations Committees were discussed. Bills introduced and
passed were discussed. (Refer to http://www:le.state.ut.us for legislative
issues).
EIRI Day. Early Intervention Research Institute will host its annual conference
March 22.
IX. AGENDA ITEMS/ASSIGNMENTS FOR NEXT MEETING. Preparation for elections
for September 20.
X. NEXT SCHEDULED ICC MEETING. May 10, 2002 at
9:30 AM at DOH Children with Special Health Care Needs, 44 North Medical
Drive, Salt Lake City, Utah. (NOTE: It was set for May 17, 2002 and later
changed to May 10).
XI. ADJOURNMENT. A MOTION was made by Kris Fawson/seconded
by Jill Adams that the meeting adjourn at 12:08 PM. Motion passed unanimously.
APPROVED AS TO FORM:
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Judi Nielsen, Chair for ICC
MINUTES SUBMITTED BY:
_____________________________________________
Mary Potter, Executive Secretary for ICC
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